Parents' Perceptions of Chronic Illness Trajectories

Authors

  • Sharon Odgen Burke
  • Elizabeth Kauffmann
  • Jennifer LaSalle
  • Margaret B. Harrison
  • Carol Wong

Abstract

The notion of a small, generic set of chronic illness trajectories that can be independent of specific medical diagnoses, though controversial, has some theoretical, clinical, and qualitative research support. The purpose of this study was to quantitatively describe trajectories among parents of children with a chronic condition. It was hypothesized that factor analysis would confirm 3 trajectories similar to those in the qualitative literature and that parents' perceptions of their child's trajectory would differ significantly from medically based perceptions. A total of 140 parents provided data on their perceptions of the past, present, and future course of the condition of their repeatedly hospitalized child. Fourteen time-related items from the Coping Health Inventory for Parents Questionnaire

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Published

2016-04-14

Issue

Section

Articles