Implications of Living With a Strong Family History of Breast Cancer

Abstract

The findings presented here are from a qualitative study in which data were gathered from 20 women who had received inconclusive genetic testing results for inherited breast cancer susceptibility. Before describing the significance, for them, of their genetic test results, all of the participants related what it was like to live with a strong family history of breast cancer. The focus of this article is the women's experience of living with a personal and strong family history of breast cancer. For these women, having such a history had become a fact of life that could not be ignored. Three themes were identified in the data: expecting and dealing with a diagnosis of breast cancer, protecting oneself and others, and increasing exposure to cancer screening procedures. These themes address the underlying reality that having a personal and family history of breast cancer is not an isolated situation but part of one's journey in choosing to undergo genetic testing for inherited breast cancer susceptibility.