Daily Struggles: Living With Long-Term Childhood Technology Dependence

Eren Alexander, Janet E. Rennick, Franco Carnevale, Michael Davis

Abstract


With advances in technology, children with chronic illnesses are surviving longer. This improved survival rate has resulted in a growing population of families caring for their children with complex needs at home. This grounded theory study explored how caring for a child who requires home ventilation affects family members. Families moved through a process of struggling daily as they cared for their child with complex needs. This ongoing struggle was characterized by three distinct dimensions: getting over the hump, starting to breathe, and having to deal with a subsequent event. Implications for practice and future directions for nursing research are discussed.
Keywords: technology dependence, home ventilation, family functioning, children, grounded theory

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